Collaboration
Oracle Head & Neck Cancer UK works with a wide range of stakeholders in the NHS, patient groups, pharmaceutical and 3rd sector to improve best practices in dealing with head and neck cancers. Through collaboration and knowledge sharing we hope to reduce the inequalities in outcomes across the UK and improve diagnosis/survival rates for patients.
Oracle Head & Neck Cancer UK is hugely supportive of more of this happening within research and clinical advancement for head and neck cancer in the UK. We also want ensure that the voices involved are as diverse and as representative as possible of the wider patient, carer and public community. If you wish to contribute to our Healthcare Professionals and Researchers collaboration materials, please email here.
Seeking Specialists for Head & Neck Cancer Late Effects Guidelines
A new initiative being led by Emma Hallam and Sabina Khan, Consultant Therapeutic Radiographers) is underway to develop national best practice guidelines for managing late effects of head and neck cancer treatment. We're seeking experienced nurses, surgeons, dieticians, specialist dentists, physiotherapists, and occupational therapists to join this important project.
The project will create evidence-based guidance across 18 key areas including Mental Health, Speech & Swallow, Lymphoedema, Dental Care, and Pain Management. Participants can join either:
Core Working Group (12-month commitment, 3hrs/month + virtual meetings) or Advisory Group (flexible involvement in guidance development)
Interested? Email: lateeffects@oraclehnc.org.uk with your:
- Professional background
- H&N cancer experience
- Preferred specialty area
- Desired group (Core/Advisory)
Help shape the future of late effects care. Full details available upon request.
Deadline: December 31st 2024 Contact: lateeffects@oraclehnc.org.uk
Patient and Public Involvement (PPI) case study
We created Oracle Voices following requests from experts seeking advice from patients (and their carers) to help guide current and future cancer care, and also in the development of cancer research itself.
We believe patient involvement is crucial in healthcare, a factor increasingly recognised by life sciences companies and research institutes. The article below, which one of our Oracle Voices patients was involved in, is a case study on a life sciences company that founded a patient expert board, ahead of launching a new research and development (R&D) institute. The aim was to foster a patient-centric culture within the company. The case study explores the history and key developments in patient and public involvement, emphasising a shift from paternalistic to patient-centred approaches, noting few available case studies on patient board collaborations in life sciences. It outlines the evolution of the board, its impact, and practical lessons learned, with related recommendations.
Healthcare Professional Groups and Charities
BAHNON
"The British Association of Head and Neck Oncology Nurses fostered links with Oracle in September 2022 after we were introduced to the charity CEO Tamara Kahn. Tamara shared the work of Oracle with our committee members through which we have become stakeholders promoting the work that the charity ensures amongst head and neck colleagues and head and neck patients themselves from around the United Kingdom.
We refer patients to the website for additional information and support and have provided patient stories for the website itself. Working with Oracle we are seeking to raise the profile of head and neck cancer, improving services and links and as a committee look forward to future collaboration."
Jo Greedy, Chair for Bahnon, August 2023
cancer 52
Cancer52 is an alliance of over 100 organisations, working together as the voice for rare and less common cancers. These are cancers which are often under-represented in services, policy and research. We want to address this inequality and improve outcomes for patients and their families.
One Cancer Voice
One Cancer Voice is a coalition of over 40 leading cancer charities who collaborate on the issues and interests that affect all cancer patients, working across the sector to call for change. Our voice is stronger together. And together we want to make sure that all cancer patients get the care and support they need and deserve.
HPV Coalition
The HPV Coalition launched in 2022 and is an expert advisory group of leading patient groups, professional groups, clinicians, and expert individuals who have come together to inform and advance the UK’s journey towards the elimination of HPV-related cancers.
Head & Neck Cancer Coalition
The Head and Neck Cancer Coalition is a group of 15 members comprising charities, support groups and healthcare associations who have come together to create one strong voice for all those affected by Head and Neck cancers in the UK. We are pooling our collective resources to raise awareness and create better understanding of all aspects of Head and Neck cancer.
Call 0203 475 3471
Email info@oraclehnc.org.uk
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Oracle Head & Neck Cancer UK is a registered charity in England and Wales (1142037), and in Scotland (SC052790).
Registered as a company limited by guarantee in England and Wales (7125497). Registered address: 80 Coombe Road, New Malden KT3 4QS.