Oracle Voices

Increasingly, experts are seeking advice from patients (and their carers) to help guide current and future cancer care, and also the development of cancer research itself.

Oracle Head & Neck Cancer UK is hugely supportive of more of this happening within research and clinical advancement for head and neck cancer in the UK. We also want ensure that the voices involved are as diverse and as representative as possible of the wider patient, carer and public community.

Become An Oracle Voice

Anson and Hazel tell you what Oracle Voices does

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Help us grow awareness and input to research projects

You may have direct lived experience of Head and Neck cancer as a patient or carer, or you may just be passionate about helping us ensure that there is greater understanding of these cancers in the wider population and that all voices are represented.

We want your help to grow awareness and address unmet needs in Head and Neck cancers in the UK. This will help us:

get the right messages to the right communities so that they are effective,
make sure that healthcare projects consider all types of patients and communities,
keep the patient and their families at the centre of everything we do.

Opportunities may include:

Responding to surveys or questionnaires
Participating in steering group discussions
Attending focus groups, workshops, events
Being an active member within research groups
Evaluating and reviewing documents
Acting as a co-applicant in research funding applications

AND we are working hard to make sure that those that are involved have the opportunity to be properly compensated and remunerated for their time and inputs.

Patient and Public Involvement (PPI) case study

We believe patient involvement is crucial in healthcare, a factor increasingly recognised by life sciences companies and research institutes. The article below, which one of our Oracle Voices patients was involved in, is a case study on a life sciences company that founded a patient expert board, ahead of launching a new research and development (R&D) institute. The aim was to foster a patient-centric culture within the company. The case study explores the history and key developments in patient and public involvement, emphasising a shift from paternalistic to patient-centred approaches, noting few available case studies on patient board collaborations in life sciences. It outlines the evolution of the board, its impact, and practical lessons learned, with related recommendations.

PPI Case Study - download here

If you are interested in being part of Oracle Voices please complete the following form below