Currently there is no national audit and not enough data on Head and Neck cancers across the UK, NHS trusts and hospitals.  We are working with key partners and stakeholders to address this.

The highest incidence and mortality rates of Head and Neck cancers, particularly non-HPV related cancers, are linked to deprivation, significant tobacco use, frequent and heavy alcohol consumption, poor oral hygiene and certain ethnic groups. There is a significant and noticeable gap in data to guide where and how these differences can be addressed. 

Although significant advances have been made in recent years, including the use of immunotherapy and robotic-assisted surgery, there is still a significant gap in knowledge and research into how best to treat the more rare cancers such as Adenoid Cystic Carcinoma, Paranasal Sinus cancer and Nasal Cavity cancer. The quality of life for these patients is poor, leaving patients with debilitating speech, eating, swallowing and/or respiratory problems as well as psychological effects such as loss of function and change in body image.  Many of these outcomes are life changing and can be permanent.

Awareness campaigns are key to early detection for all cancers including Head and Neck cancers. Local and targeted campaigns need to be run in parallel to national campaigns if the most at-risk groups are to be reached.  Change requires repeated messages and ongoing efforts; it does not result from a single message. Community focused awareness campaigns need to ensure a focus on inclusivity. This would include consideration of location, format, content, language and mechanism of delivery.