The Patient Hub
This page is our patient hub. It provides links to our facebook support group, podcasts on various head and neck cancer topics and recipes for delicious food to get you through treatment and beyond.
Scroll down the page for our extensive library of patient stories organised by cancer type.
Facebook Group
Nobody can offer advice like a fellow patient. Join our private online support group to speak to people who have been through similar experiences.
Join Michelle Vickers, our CAO as she speaks with a range of interesting people who are all linked to head and neck cancers, either personally or professionally.
Head and neck cancer can have a huge impact on saliva and mouth function. We have created resources for those who struggle with eating and nutrition.
Opportunity to Join a Research Study: LOOC Trial
We’re helping to raise awareness of the LOOC trial – a national research study aiming to personalise treatment for people with oropharyngeal cancer (OPC). The goal is to reduce side effects from treatment and improve quality of life.
About the trial
This study is testing a new imaging technique to help determine whether treatment to one or both sides of the neck is needed. For many patients, treating only one side can significantly improve recovery.
Who can take part?
You may be eligible if you:
– Have recently been diagnosed with oropharyngeal cancer (tongue base, tonsil, soft palate or pharyngeal wall)
– Have lymph nodes involved on one side of the neck
– Have not previously had head and neck cancer
The trial involves a scan and a small injection of radiotracer under general anaesthetic. This is often done at the same time as other routine procedures like a biopsy or dental extraction.
Where is the trial taking place?
The study is being run at five specialist hospitals:
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University College Hospital (UCLH), London
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The Royal Marsden, London
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St George’s Hospital, London
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Liverpool Head and Neck Centre (Aintree)
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Royal Surrey Hospital, Guildford
If you’re eligible, your care may be transferred temporarily to one of these centres.
Interested?
If you’d like to learn more or ask about joining the study, you can:
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Speak with your hospital team or CNS
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Email the trial team: ncita.looc@ucl.ac.uk
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Visit the NIHR award page
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Read more about the research team at UCL Head & Neck Academic Centre
Patient Stories
Our video library of people impacted by cancer discussing their unique journeys, treatments and life after cancer. Many patients find comfort in the perspectives of those who have gone through similar experiences.
Oracle Head & Neck Cancer UK is a registered charity in England and Wales (1142037), and in Scotland (SC052790).
Registered as a company limited by guarantee in England and Wales (7125497). Registered address: 80 Coombe Road, New Malden KT3 4QS.