Peer to Peer Support

Heads2gether hold online Zoom-based meetings every month on the third Wednesday at 6:30pm.  They also hold monthly meetings at the Maggie’s centre next to the Churchill Hospital in Oxford, Maggie’s centre next to the University Hospital in Southampton and the Community Room at Tesco Extra in Swindon.  Look at their website for more face-to-face meetings at new venues.

To see more about the way Head2gether has helped other head and neck cancer patients and cares see: https://youtu.be/c-VLpnREzVk

To sign up for the meetings, visit: https://www.heads2gether.net/virtual-meeting-registration/

Heads2gether Helpline: 0800 0234 550

Weekly patient and carer online support group meeting via Zoom – 1900 Mondays.

Mouth Cancer Foundation Closed Facebook group 

Patient Carer Advice Line – 01924 950950

For further information email info@mouthcancerfoundation.org

OUTpatients (formerly ‘Live Through This’) exists to support and advocate for our Lesbian, Gay, Bisexual, Transgender, Intersex and Queer communities when they are affected by cancer.

For further information: https://outpatients.org.uk/

Regular hybrid gatherings are held in Manchester and London.  We provide opportunities to meet other patients and carers, learn about that latest research and work with us to move things forward.  Join our network to get involved:  Join Our Network – Salivary Gland Cancer UK.  Email hello@salivaryglandcancer.uk or DM via twitter/FB/Insta @SGCancerUK

Shine is the only UK charity that support adults in their 20s, 30s and 40s who have experienced a cancer diagnosis.

There is never a good time to have cancer, but we know that younger adults face different issues than their older or younger counterparts. Many of these are not dealt with by traditional cancer support charities and services.

For more information: https://shinecancersupport.org/

The National Association of Laryngectomee Clubs (NALC) was set up in 1975 by laryngectomee groups in London, Bristol, Nottingham and Birmingham. Its purpose is to promote the rehabilitation of laryngectomees after their operation, providing them with the information and support that´s needed. It also seeks to promote public understanding of the needs of laryngectomees, their carers and families.

See https://laryngectomy.org.uk/

Services provided by NALC

Information for patients

They provide leaflets and DVDs to help and inform patients before and after their surgery. Many hospital trusts give their patients our information packs.

Online support

They have a website from which all our leaflets can be downloaded, along with news of laryngectomee developments and events. We have a Youtube channel with many videos available and we are active on Twitter.

Telephone advice

Their phoneline provides a nationwide resource for laryngectomees and their families when they need support and advice. We also support professionals in a variety of settings who work with laryngectomees, especially those unfamiliar with our needs, such as care home staff.

CLAN

Their quarterly newsletter keeps members up to date with laryngectomee news, new prescription items and laryngectomee activities.

Zoom Meetings

Online meetings, using the Zoom platform, are organised throughout the year. They invite guest speakers, often clinicians who are experienced in working with laryngectomees.

For further information email info@laryngectomy.org.uk or telephone 0207 730 8585.

Monthly online meeting with guest speakers.  1900 every second Wednesday of the month.

Face to Face meetings in Blackpool, Lincolnshire, Milton Keynes, Torbay and Worcester 1830 to 2000 every second Wednesday of the month.

For further information email info@theswallows.org.uk

The Young Tongues is a peer to peer support group made up of young people who have been diagnosed with Tongue Cancer or a cancer diagnosis that involves similar treatment.

For more information: https://www.youngtonguesglobal.com/