Living Beyond Cancer: My Journey Through Stage 4 Head and Neck Cancer 

In early 2023, my life took a dramatic turn. What began as a persistent ear pain more than 7 months in September 2022 and later swollen lymph nodes led to a diagnosis that shook me to my core: stage 4 head and neck cancer. 

I had sought help multiple times: from my GP, my dentist and even a maxillofacial consultant at Kingston Hospital. He bluntly said, “You shouldn’t even be here on a two-week pathway appointment”. Despite my insistence, including a demanded ultrasound scan at Epsom Hospital that came back negative, no one listened. Prescribed antibiotics, Sudafed and made no referrals. The delays were agonising, and I felt invisible. But eventually, I was heard – and that changed everything. 

I insisted for a second opinion and chose a hospital of my choice – East Surrey hospital for another referral and as they were fully booked, I was referred to Royal Surrey Hospital, where I met the extraordinary surgical team: Mr Walsh, Mr Bajwa, Mr Bater, Mr D’Souza and Mr Danford. They didn’t just treat me – they gave me hope. They assured me I would have a second chance, and they delivered on that promise with compassion, skill and unwavering support. 

After a radical surgery, reconstruction of part of the tongue, jaw and floor of the mouth/gum followed by gruelling rounds of radiotherapy, I began to rebuild. Just six months later, in February 2024, I fundraised for Oracle Head and Neck Cancer – a cause close to my heart (which our son, Chris chose after extensive research). It was more than an event; it was a declaration that I was still here, still fighting and determined to give back. 

Since then, I’ve been invited to share my journey at head and neck cancer support groups and recently, I was honoured to be asked by the Lead Specialist Nurse to speak at the Education Day at Royal Surrey Hospital. These opportunities remind me that my story matters – and that it can help others feel less alone. I also organise some taster sessions of the therapies I benefit from for the Head & Neck cancer support groups. 

I have been reflecting further on some of the practical aspects of navigating life after treatment. Late effects can often be an ongoing challenge, and I believe that sharing simple, tried-and-tested tips can make a real difference for others going through similar experiences. 

One small but effective piece of useful tip I’d like to share is around skin care – something I personally had to manage as a late side effect of radiotherapy. Due to drooling of saliva, I developed a skin rash with blisters in the treated area. A Dermatology Consultant recommended applying Vaseline to the affected skin. It’s a cheap, widely available solution, and most importantly, it worked. This helped soothe and protect the irritated skin. And prior to going to sleep every night I apply Vaseline around my lip corners as per the Dermatology Consultant’s advice. It certainly prevents rash around my chin and lip area by drooling of thick saliva during sleep. 

Sometimes, it’s the simplest remedies that bring the greatest relief. I hope tips like this can offer others not just comfort, but a sense of empowerment as they navigate life beyond cancer treatment. 

Cancer has changed me profoundly. It’s made me more present, more grateful, and more connected to life. I’ve taken my first holiday post-treatment, spending precious time in Dubai with my daughter and family. My husband and children, who stood by me through every moment of despair, they have been my rock. My husband Joseph’s patience and love carried me through. 

Today, I volunteer, and the joy, peace, and sense of purpose it brings are beyond words. My faith sustains me through the daily challenges that many head and neck cancer patients face. I’ve found healing in unexpected places – through music, qigong, breathwork, yoga and reflexology, and gratitude journaling. These practices have helped me reconnect with my body and spirit. 

I’m proud to be involved with Oracle Head and Neck Cancer and grateful to work alongside inspiring individuals whose down-to-earth nature and dedication make a real difference. 

This journey hasn’t been easy, but it has been transformative. I am living beyond cancer – and I am living fully. 

Here’s a quote that captures the heart of my journey: 
“Cancer tried to silence me, but I found my voice in survival. Every scar tells a story of strength, and every breath is a celebration of life.”